1,338 enforcement actions from 14 federal and state jurisdictions. Every event traced back to its official government source.
1,338
Total Actions
14
Jurisdictions
$50.6B+
Total Fines Tracked
Connecticut Attorney General William Tong submitted testimony in support of genetic privacy legislation that would grant residents exclusive control over their DNA and genetic data. The legislation is inspired by his office's investigation into 23andMe's data breach affecting over six million customers and the company's subsequent bankruptcy. The bill requires express consent for DNA use, imposes security measures, and prohibits marketing use of DNA.
Texas Attorney General Ken Paxton filed a lawsuit in the 23andMe bankruptcy case to prevent the sale of Texans' genetic data without proper consent. The action seeks to confirm Texans' property rights over their genetic information under the Texas Data Privacy and Security Act and the Texas Direct-to-Consumer Genetic Testing Act. The AG argues that 23andMe's proposed asset sale would violate Texas law requiring separate express consent for disclosure of genetic information.
Connecticut joined a coalition of 28 attorneys general to object to 23andMe's proposed sale of genetic data in bankruptcy without customer consent. The states argue such sensitive information requires express consent and cannot be sold like ordinary property. Attorney General Tong also advised consumers to delete their data and genetic samples.
Texas Attorney General Ken Paxton filed a motion to appoint a Consumer Privacy Ombudsman in the Chapter 11 bankruptcy case of 23andMe to protect the sensitive genetic and personal data of Texans. The genetic testing company seeks to sell assets that may include genetic data, health information, and personally identifiable information. The AG's office is also informing Texans of their rights under Texas law to request deletion of their data and genetic samples.
The FTC finalized an order against 1Health.io for failing to secure genetic data and unfairly changing its privacy policy. The company must pay $75,000 for consumer refunds, destroy DNA samples, and implement security measures. It deceived consumers about data deletion and shared data without proper consent.
$75K
The FTC settled with genetic testing company 1Health.io for failing to secure sensitive genetic and health data, deceiving consumers about data deletion, and unfairly changing its privacy policy without notice or consent. The settlement includes refunds totaling over $49,500 to 2,432 affected consumers.
$50K
All data sourced from official government enforcement pages.